2023 RARE Advocacy Summit

September 19, 2023 – September 20, 2023

Connect. Inspire. Learn

Each year, Global Genes convenes one of the world’s largest gatherings of rare disease patients, caregivers, advocates, healthcare professionals, researchers, partners, and allies at the RARE Advocacy Summit.

Who Should Attend?

* Patient advocacy group leaders

* Rare disease patients

* Caregivers

* Rare disease advocates

2023 Speakers

We will be announcing the speakers for the 2023 RARE Advocacy Summit after registration launches. Check back for a complete list of speakers soon!

Thank you to our Sponsors

Interested in supporting the 2023 RARE Advocacy Summit?

2022 Recap

Check out some stats from our event last year.

2022 Rare Patient Advocacy Summit Stats

Watch the 2022 RDDS Highlight Video