Join us September 12-14, 2022 in San Diego, CA (and virtually!) for the 2022 RARE Patient Advocacy Summit: Rare Life. Bonded Together

Each year, Global Genes convenes one of the world’s largest gatherings of rare disease patients, caregivers, advocates, healthcare professionals, researchers, partners, and allies at the RARE Patient Advocacy Summit. 

This year we’re celebrating being back together again, and have opportunities for you to join us in person or online for two days of connection opportunities, educational sessions, fun, and the RARE Champions of Hope Awards Ceremony and Dinner! 

Summit sessions provide attendees with insights about the latest in rare disease innovations, best practices for advocating on an individual and organizational level, and actionable strategies to take home. This year, the Summit will be a hybrid event so all can attend – in person at the Town & Country Hotel in San Diego, California and live streamed online in our virtual event platform.

For now…save the date – September 12-14, 2022 – and stay tuned for more information as registration opens this summer, kicking off with a Facebook streaming party and opening day coupon code.

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Watch all 33 recorded meetings and discussions that we’ve separated into easily managed categories: Rare Life & Patent Care, Tactics & Capacity Building, Leadership Skills Lab, and International Discussions. Gain insights about the latest in rare disease innovations, best practices for advocating on an individual and organizational level, and actionable strategies you can implement to accelerate change. 

Watch 2021’s Patient Advocacy Summit here or on our youtube channel.

 

 

From: 09/12/2022 - To: 09/14/2022

08:00 AM - 05:00 PM UTC-12:00

Town & Country Hotel, 500 Hotel Cir N, San Diego, CA 92108

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