2022 RARE Patient Advocacy Summit
Rare Life. Bonded Together

September 12-14, 2022
San Diego, CA (and virtually!)

Each year, Global Genes convenes one of the world’s largest gatherings of rare disease patients, caregivers, advocates, healthcare professionals, researchers, partners, and allies at the RARE Patient Advocacy Summit.

This year we’re celebrating being back together again, and have opportunities for you to join us in person or online for two days of connection opportunities, educational sessions, fun, and the RARE Champions of Hope Awards Ceremony and Dinner!

Summit sessions provide attendees with insights about the latest in rare disease innovations, best practices for advocating on an individual and organizational level, and actionable strategies to take home. This year, the Summit will be a hybrid event so all can attend – in person at the Town & Country Hotel in San Diego, California and live streamed online in our virtual event platform.

 

Register Now

View Agenda

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Watch 2021’s Patient Advocacy Summit here or on our youtube channel.

Watch all 33 recorded meetings and discussions that we’ve separated into easily managed categories: Rare Life & Patent Care, Tactics & Capacity Building, Leadership Skills Lab, and International Discussions. Gain insights about the latest in rare disease innovations, best practices for advocating on an individual and organizational level, and actionable strategies you can implement to accelerate change.

 

From: 09/12/2022 - To: 09/14/2022

08:00 AM - 05:00 PM UTC-12:00

Town & Country Hotel, 500 Hotel Cir N, San Diego, CA 92108

Champion Sponsor

Title Sponsor

Presenting Sponsors

Gold Sponsors

Industry Session Sponsors

Patient Advocate Stipend Sponsors

Champions of Hope Sponsors

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