We are a global community changing the way the world tackles rare disease. Our partners include nonprofit, government, academic, research, service and industry organizations that believe collaboration is the key to positive change.

Partner with us. Together, we can connect, empower and inspire the rare disease community. 

The Global Genes RARE Foundation Alliance is a coalition of more than 500 rare disease organizations that believe in the power of collective impact and understand that together, we are more powerful.

Foundation Alliance membership provides networking opportunities and effective strategies, tools and resources to help build a foundation’s capacity. Foundation Alliance partners collaborate and exchange best practices to drive better outcomes for the rare disease community.

Member Eligibility 

Provide access to information through a website or active Facebook page

Offer rare disease information or support in one or more of the following areas: 

  • Patient/Caregiver Support
  • Healthcare provider education
  • Public awareness and advocacy
  • Research

Types of Groups Eligible

  • Support groups
  • U.S. Foundations with 501(c)(3) status
  • International foundations

View the full list of Foundation Alliance members.

Contact us to learn more about becoming a RARE Foundation Alliance member.