We are a global community changing the way the world tackles rare disease. Our partners include nonprofit, government, academic, research, service and industry organizations that believe collaboration is the key to positive change.
Partner with us. Together, we can connect, empower and inspire the rare disease community.
The Global Genes RARE Foundation Alliance is a coalition of more than 600 rare disease organizations that believe in the power of collective impact and understand that together, we are more powerful.
Foundation Alliance membership provides networking opportunities and effective strategies, tools and resources to help build a foundation’s capacity. Foundation Alliance partners collaborate and exchange best practices to drive better outcomes for the rare disease community.
Welcome New Members!
Sickle Cell and Young Stroke Survivors, SynGap Research Fund, Inc, National Hemophilia Foundation, Save Sight Now, PMP Pals Network, Boston International Turner Syndrome Summit, CureSPG50, Mickie’s Miracles, Stories Matter Foundation, Gaucher Community Alliance, Fighting for Kaiden Foundation, Inc., Jansen de Vries Syndrome Foundation, One Rare, Brave Minds Project, Pompe Warrior Foundation, COMBINEDBrain
To be eligible to join the Foundation Alliance, you must be a support group, U.S. Foundation with 501(c)(3) status or international foundation and be able to provide access to information through a website or active Facebook page, offering rare disease information or support in one or more of the following ways: patient /caregiver support, healthcare provider education, public awareness and advocacy and/or research.