RARE Foundation Alliance

Foundation Alliance partners are rare disease foundations which have committed to working with Global Genes and other nonprofit foundations to collaborate to create a stronger collective voice in the rare disease community.

“The Power of the Collective Impact”

By bringing together the strengths from rare organizations we can work together to create measurable change within the rare disease community!  By supporting and creating an information exchange we give rare organizations the opportunity to become stronger.

To learn more about the program and membership benefits, please download this presentation.

If you wish to have your nonprofit foundation listed, please click the “supporting organization” link at the top right.  If you would like more information on this program, please contact Carrie Ostrea, Global Genes Patient Advocacy Manager.