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Media & Publications

Keep up to date with the latest news in rare disease! Here you’ll have access to interviews with leading experts and stakeholders, profiles on rare leaders, and updates on the state of rare disease research, drug development, policy, and advocacy.

RARECast Weekly Podcast

Listen to the weekly podcast hosted by Daniel Levine. Episodes feature patient, business and research focused interviews with rare disease stakeholders.

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RARE Daily Blog

Get to know up-and-coming rare disease leaders and read the latest news in rare disease drug development, research, policy, and advocacy efforts!

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NEXT Report

Over the course of each year, the NEXT Report discusses advancements in rare disease, and what comes next in drug development, technology, and financial impact. Discover this year’s impact here.

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