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RARE Impact Grant Opportunities

Global Genes provides grants to rare disease patient advocacy organizations to make specific, tangible differences for the communities they serve.

In 2023, grants will be awarded to Global Advocacy Alliance member organizations.

To further their work and to develop programs to address health equity, in-person meeting and community building opportunities, health and wellbeing of the rare community, and families impacted or displaced by the war in Ukraine.

2023 Rare Disease Grant Opportunities

Health Equity in RARE Impact Grant

To improve outreach strategies and address challenges that affect underserved and underrepresented patient communities.

Learn More About the Grant

RARE Meet-Ups Impact Grant

Support for in-person meetings and community building opportunities to foster collaboration, social support, education, and awareness.

Learn More About the Grant

Health & Mental Wellbeing Impact Grants

An opportunity for patient advocacy leaders to improve the health and mental well-being of the rare disease community–including children, siblings, caregivers/care partners and those who are grieving.

Learn More About the Program

2022 Impact Grants Have Been Awarded To:

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Words From Previous Winners

“Thanks to the support of grant funding, we were able to focus our efforts on providing the necessary care to patients, on finding drugs and arranging their delivery, to provide psychological assistance, to interact with volunteer, state and local services to more effectively solve the problems that patients had after the start of the war in Ukraine. It is important to feel the support of friends from all over the world, it really helps a lot not to give up and keep fighting! We are very grateful to you!!! Thanks!!!”

-PHA Ukraine, Oksana

“These meetings help in so many ways! It is emotional and affirming to meet with other children and families with the same wonderful kids. The presentations are focussed and almost 100% relevant and useful – the information keeps coming thick and fast.
And the networking with other families builds bonds of support and also gives lots of useful day-to-day Tips.”

-Caregiver, Meet-ups Grant

“Thank you for your recent gift to the Global Foundation for Peroxisomal Disorders. Your generous contribution will help us support families from 39 countries around the world impacted by peroxisomal disorders, while also funding groundbreaking research initiatives to improve quality of life for patients impacted by this devastating childhood disease. Thank you for choosing to support GFP and opening your heart to our families.”

– Melissa Bryce, ED and Co-Founder of Global Foundation for Peroxisomal Disorders

“Thanks to the support of grant funding, we were able to focus our efforts on providing the necessary care to patients, on finding drugs and arranging their delivery, to provide psychological assistance, to interact with volunteer, state and local services to more effectively solve the problems that patients had after the start of the war in Ukraine. It is important to feel the support of friends from all over the world, it really helps a lot not to give up and keep fighting! We are very grateful to you!!! Thanks!!!”

“These meetings help in so many ways! It is emotional and affirming to meet with other children and families with the same wonderful kids. The presentations are focussed and almost 100% relevant and useful – the information keeps coming thick and fast.
And the networking with other families builds bonds of support and also gives lots of useful day-to-day Tips.”

“These meetings help in so many ways! It is emotional and affirming to meet with other children and families with the same wonderful kids. The presentations are focussed and almost 100% relevant and useful – the information keeps coming thick and fast.
And the networking with other families builds bonds of support and also gives lots of useful day-to-day Tips.”

-Caregiver, Meet-ups Grant

“Thank you for your recent gift to the Global Foundation for Peroxisomal Disorders. Your generous contribution will help us support families from 39 countries around the world impacted by peroxisomal disorders, while also funding groundbreaking research initiatives to improve quality of life for patients impacted by this devastating childhood disease. Thank you for choosing to support GFP and opening your heart to our families.”

– Melissa Bryce, ED and Co-Founder of Global Foundation for Peroxisomal Disorders

Thank you to the 2022 Patient Impact Grant Sponsors

Interested in supporting Impact Grants in 2023? Download the prospectus or contact us

2023 Grant Timeline

December 5, 2022

All 2023 Grant Topics Announced

January 9, 2023

Mental Health Grant Application Opens

31/1/2021

Mental Health Grant Application Closes

Week of March 6, 2023

Mental Health Grant Awardees Notified

April 7, 2023

Health Equity Grant Application Opens

April 12, 2023

Rare Meet-Ups Grant Application Opens

Week of May 1, 2023

Health Equity Grant Awardees Notified

May 12, 2023

Rare Meet-Ups Grant Application Closes

Week of June 5, 2023

Rare Meet-Ups Grant Awardees Notified