Patient Story Submission Form

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Patient Story Submission Form

    By default, we like to share the City/State that you provide here within the story on our website. If you prefer to have your location remain anonymous please select "NO" above.
  • We will never share your phone number. It is NOT required. We will only use this number in the event we need to contact you about your submission.
  • Only the First name of the patient
  • e.g. http://myfoundation.org The website, blog, or Facebook page for your personal website or your disease foundation.
  • Stories should be no more than three paragraphs long.

    Tip: We love to hear your story in full. When did your symptoms first begin? At birth? Later on in life? How did your symptoms affect your every-day life? What sort of doctors did you see? What sort of exams did you have? How and when were you diagnosed—and with what? Is there a treatment or cure for your condition? Have you gone through any therapies or clinical trials? What is the outlook for the future? And lastly—what sort of advice do you have for other patients who may be going through a similar diagnostic journey?
  • Maximum File Size: 10MB
  • Maximum File Size: 10MB
  • Maximum File Size: 10MB
  • Maximum File Size: 10MB
    By submitting your story/photo, and clicking the checkbox above, you grant the Global Genes Project (& the R.A.R.E. Project) permission to use your story, photo, first name, and city/state (if provided) as part of our ongoing programs to increase rare disease awareness. We will never publicly use your last name, email, or phone number.