The Global Genes RARE Advocacy Leadership Council serves as a voice for the advocacy community. Our leaders will be working with Global Genes’ leadership, board, and other partners and the Corporate Alliance Leadership Council members to help shape, prioritize and drive strategic initiatives in support of our shared mission. If you have any questions, please email g[email protected].

RARE Advocacy Leadership Council

Are you interested in helping to shape the landscape in rare disease, while also working with other advocacy leaders and stakeholders? We are currently accepting applications to join our 2022-2024 term Leadership Council which will serve as a voice for the advocacy community. Within this leadership role, you will be working with Global Genes’ leadership, board, and other partners and the Corporate Alliance Leadership Council members to help shape, prioritize and drive strategic initiatives in support of our shared mission.

Join The Leadership Council