Groundbreakers. Leaders. Advocates. The rare disease community is full of people who inspire us all through innovation, research, compassion and a relentless spirit to affect positive change.

Through the RARE Champion of Hope Awards, we honor and recognize true champions for rare disease. More than 100 advocates were nominated by their respective communities as RARE Champions of Hope. From grassroots fundraising to incredible advancements in medicine, there was no shortage of accomplished candidates. View the entire list of nominees.

Congratulations to the 2019 RARE Champion of Hope Awardees