Groundbreakers. Leaders. Advocates. The rare disease community is full of people who inspire us all through innovation, research, compassion and a relentless spirit to affect positive change.

Through the RARE Champion of Hope Awards, we honor and recognize true champions for rare disease. More than 100 advocates were nominated by their respective communities as RARE Champions of Hope. From grassroots fundraising to incredible advancements in medicine, there was no shortage of accomplished candidates. View the entire list of nominees.

Congratulations to the 2019 RARE Champion of Hope Awardees

RARE Champion of Hope Celebration

Awardees will be honored at the RARE Champion of Hope Celebration on Friday, September 20, 2019, at the Sheraton San Diego Hotel & Marina. Tickets to the evening celebration are included with registration to the RARE Patient Advocacy Summit or may be purchased separately. Join us for an inspiring evening hosted by Master of Ceremonies Allie LaForce. Allie will also be joined by special guest and 2019 ESPY Jimmy V Award recipient, Coach Rob Mendez. 

Evening made possible by