RARE Champions of Hope

The Champions of Hope Awards honor and recognize true champions for rare disease who have made a significant impact in advocacy, industry, and research. The awards will be presented at the 2023 RARE Advocacy Summit in San Diego, California.

Groundbreakers. Leaders. Advocates. 

The RARE Champions of Hope Awards celebrate, honor and recognize those in the rare disease community who are raising the bar through their innovative approaches to research, programming and advocacy to create meaningful impact in the rare disease space. Awardees are beacons of hope in the rare disease community who lean in, take risks and lead collaborative efforts to positively impact the lives of rare disease patients, caregivers and families across the globe. 

Nominate a Champion of Hope

In 2023, the Community  will have the opportunity to nominate an individual or organizations in three categories. The nomination categories are as follows. Each category will have one winner. 

RARE Champion in Advocacy – This award recognizes an individual or organization who has created innovative programming and/or successful partnerships to support, educate, research or enable their communities in meaningful and impactful ways. 

RARE Champion in Industry – This award recognizes partners from  biopharma  who have demonstrated exceptional partnership in the rare disease space, launched innovative programming or pioneered new processes for engaging  the patient community. Nominations in this category should include concrete examples and metrics to indicate what the initiative was, how it was successful and the impact it had on those being served. 

RARE Champion in Research – This award recognizes trailblazers and leaders in rare disease research, drug development and scientific processes who have taken an innovative approach to advance outcomes for the rare disease community. Nominees in this category should be conducting patient-driven research, research in academia or research within an advocacy organization. 

All 2023 RARE Champions of Hope awardees will receive their awards during the Rare Advocacy Summit in San Diego, California from September 19-21, 2023. 

Nomination Form

Before submitting your nomination, please ensure you’ve reviewed the Frequently Asked Questions (FAQ) and category descriptions. 

To nominate a Champion of Hope, complete this nomination form.

Dates to Remember

Applications close Friday, June 16 at 12:00pm (noon) ET

Nominees will be announced the week of June 19, 2023

Awardees will be announced the week of July 10, 2023

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