Learning to Listen to the Patient-Consumer

Shay Brill remembers shopping at malls during…

CANBridge and WuXi Enter Strategic Partnership to Commercialize Rare Disease Therapies in China
Rare Daily Staff CANbridge Pharmaceutical and WuXi Biologics said they entered into a strategic partnership to enable CANbridge to develop… Continue Reading
FDA Grants Eiger Rare Pediatric Disease Designation for Lonafarnib for Progeria Drug
Rare Daily Staff The U.S. Food and Drug Administration granted Eiger BioPharmaceuticals Rare Pediatric Disease designation for lonafarnib in… Continue Reading
Stoke Therapeutics Completes $90 Million Financing
Rare Daily Staff Stoke Therapeutics said that it has completed a $90 million financing to advance its pipeline of antisense drugs for Dravet… Continue Reading
CHMP Recommends EU Approval of Shire’s HAE Drug
Rare Daily Staff The European Commission’s Committee for Medicinal Products for Human Use (CHMP) adopted a positive opinion on Shire’s… Continue Reading
CHMP Issues Positive Opinion Vertex CF Drug in Young Children
Rare Daily Staff The European Commission’s Committee for Medicinal Products for Human Use (CHMP) adopted a positive opinion on Vertex… Continue Reading
Raremark Raises $3.9 Million to Advance Rare Disease Patient-Data Platform
Rare Daily Staff Rare disease patient-data platform developer Raremark said it raised $3.9 million (£3 million) in a venture round to… Continue Reading
Gene Therapy Developer LogicBio Raises $70 Million in IPO
Gene Therapy Developer LogicBio Raises $70 Million in IPO Rare Daily Staff LogicBio Therapeutics, a genome editing company focused on… Continue Reading
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