Global Genes® Expands Board of Directors & Medical and Scientific Advisory Board To Amplify Efforts for Rare Disease Community

ALISO VIEJO, Calif. — December 8, 2016 —…

My Life with Ehlers-Danlos: Getting Underwear for Christmas
Do you remember the anticipation of seeing an unusually shaped package wrapped under the Christmas tree (or wherever your holiday gifts… Continue Reading
Of Mice and Men Frontman Austin Carlile Shares Devastating Message as He Faces Life-Threatening Illness
Metalcore titans Of Mice and Men were forced to cut their European tour short in October when frontman Austin Carlile was hospitalized for… Continue Reading
Sick But Social: But Seriously, Stop Kissing Me
By Stacey Philpot My husband has an immune system made of steel. I’ve often wondered if he has a stash of kryptonite hidden underneath the… Continue Reading
Toddler with Microvillus Inclusion Needs FIVE Organ Transplants to Survive
A 2-year-old with a rare disease is on the transplant list for not one, but five organs. Jakob Perez has microvillus inclusion, an… Continue Reading
Shire Plots Rare Disease “Innovation Hub” in Kendall Square
Shire is expanding its innovation play in Cambridge, MA, as it looks to boost its presence in Kendall Square and create a… Continue Reading
New Jersey Nursery Donates Christmas Tree Sales to Boys Battling Rare Disease
The holiday season has arrived, when revelers hit the stores or sidewalks searching for that perfect Christmas tree. But for one couple from… Continue Reading
Child Neurology Foundation to Host Webinar on Cannabis in Epilepsy
Child Neurology Community Conversations from the Voices of the Provider, the Caregiver, and the Advocate: Cannabis in Epilepsy On October… Continue Reading