Desmoplastic/nodular medulloblastoma is a histological variant of medulloblastoma (see this term) an embryonic malignancy often located in one of the cerebellar hemispheres occurring most frequently in adults and manifesting with symptoms such as vomiting and headache.
Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview. Reference: Access aggregated data from Orphanet at Orphadata. Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version April 2026
Newly diagnosed with
Desmoplastic/nodular medulloblastoma?
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Advocacy Organizations
Pediatric Brain Tumor Foundation
Since 1991, the Pediatric Brain Tumor Foundation has led in funding research, supporting families, and advocating for policies to help patients and survivors. As the largest patient advocacy funder, it drives vital discoveries, new trials, and better treatments. Guided by patient and family experiences, PBTF supports families’ needs at every stage, focusing on care of the entire family.
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Clinical Trials
For a list of clinical trials in this disease area, please click here.