Advancing Hispanic Inclusion in Rare Disease Advocacy and Research — Health Equity Forum 2023

December 19, 2023

Uniendo Voces, Unlocking Solutions: Advancing Hispanic Inclusion in Rare Disease Advocacy and Research was a session during the 2023 RARE Health Equity Forum.

This panel discussion shed light on the unique challenges and opportunities that arise when incorporating the Hispanic population into rare disease advocacy and research efforts. Panelists will delve into the importance of inclusivity, understanding cultural nuances, meeting language needs, and addressing barriers faced by the Hispanic community in accessing Spanish-language information, resources, and high-quality care. Experts from diverse backgrounds will share insights and best practices to drive collaboration, empower patients, and increase representation of the Hispanic population in the pursuit of improved treatments and support for rare diseases. Join us as we explore how addressing health disparities burdening Hispanic patients can drive innovation and ensure equitable outcomes for all.

Deborah Requesens, PhD
Cofounder, Sociedad Hispana de Enfermedades Raras (SHER)

* Victoria Arteaga, MBA
Co-founder, Sociedad Hispana de Enfermedades Raras (SHER)

* Mario Estevez
Organizer / Trainer, Racial Equity Institute

* Beatriz Mallory
Executive Director, HEARD Kids

* Carlos Martinez Villela
Project Manager, America’s Health Foundation

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