Fundraising Do’s & Don’ts – Patient Advocacy Summit session

Non-profit organization leaders shared their knowledge about how to raise and spend funds for non-profit organizations in the rare disease space at the Patient Advocacy Summit in San Diego, California September 12-14, 2022.

Sarita Edwards led the discussion by asking how Kristina Bowyer and Gina Hann would go about setting goals for fundraising when asking for funds, different ways to seek funds, what an organization needs to do before starting the fundraising efforts, when to involve researchers and other industry professionals, and other key aspects of fundraising for non-profits in the rare disease space.

Fundraising Do’s and Don’ts is part of the Skillbuilding Track at the summit. The Patient Advocacy Summit brings together rare disease patients, caregivers, advocates, healthcare professionals, researchers, partners, and allies to connect, learn, and have fun.

Moderator:
Sarita Edwards, CEO and President, The E. We Foundation

Panelists:
Kristina Bowyer, Vice President, Patient Centric Drug Development, Ionis Pharmaceuticals, Inc.
Gina Hann, RARE Mom, Co-Founder, Rare Village