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RDDS 2022 Webinar: Getting Your Community Ready for Clinical Trials
This is the second in a series of three videos in conjunction with the Rare Drug Development […]
Read moreGlobal Genes Team Represents During Rare Disease Day/Week
The Global Genes team participated in Rare Disease Day events and shared their connections to rare disease last week. Check out this highlight video featuring our team out and about, from California, to Utah, to Washington D.C. to London!
Read moreGuide to Palliative Care and Complex Care: Patient Advocacy Summit Session
Guide to Palliative Care and Complex Care was part of the Caregivers Track at the Patient Advocacy […]
Read moreGrieving as a Community: Patient Advocacy Summit Session
Grieving as a Community was part of the Caregivers Track at the Patient Advocacy Summit in San […]
Read moreGrandparents as Caregivers: Patient Advocacy Summit Session
Grandparents as Caregivers was part of the Caregivers Track at the Patient Advocacy Summit in San Diego, […]
Read moreThe RARE Siblings Experience: Patient Advocacy Summit Session
The RARE Siblings Experience puts the focus on the siblings of individuals with rare disease at the […]
Read morePreventing Caregiver Burnout: Patient Advocacy Summit Session
RARE parents provided their insight about preventing caregiver burnout and depression at the Patient Advocacy Summit in […]
Read moreCoronavirus (COVID 19) Resources
Coming together to help each other thrive is what the rare disease community does best. As […]
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