Global Genes™ is a 501(c)(3) non-profit corporation. Our Leadership Team, Board of Directors and Advisory Teams are committed to programs centered on our core mission of working to eliminate the challenges of rare disease.

Global Genes™ Team
 Learn more about the Global Genes Team by clicking their photos
Andrea headshot sized
Nicole Boice Andrea Epstein Amy Grover
Founder & CEO Executive Director Director, Operations
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Carrie Ostrea Christina Fumia Lisa James
Director, Advocacy Director, Marketing & Communications Manager, Tech Strategies
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Kathy O’Connor Katie Mastro Ashley Girtman
Manager, Development Program Manager Program & Event Manager
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Jaymie Rodems Ilana Jacqueline
Coordinator, Marketing & Communications Managing Editor, RARE Daily





Board of Directors
 Nicole Boice, Founder & President  John Crowley, Board Member  Natalie Douglas, Board Member
Nicole Boice John F. Crowley Natalie Douglas
Founder & CEO of Global Genes™ CEO of Amicus Therapeutics Parent Advocate Co-founder, Partner and Executive Chairman of Rocket Science
 Wendy White website pic  Hugh Hempel, Board Member  Caroline Loewy, Board Member
Wendy White Hugh Hempel Caroline Loewy
Founder & CEO of Siren Interactive Founder of Solution Therapeutics Parent Advocate EVP & CFO of Tobira Therapeutics Parent Advocate
Barbara Lavery, Board Member Peter Pellizon, Board Member  Norman Schmeltzer, Board Member
Barbara Lavery, Board Chair Peter J. Pellizzon Norman Schmeltzer
President of Zoomedia Founder of Hollencrest Capital O’Connor, Schmeltzer & O’Connor


Strategic Advisors
 Jason Omenn, Strategic Advisor Brian Campion, Strategic Advisor  Jesse Dylan, Board Member
Jason Omenn Brian Campion  Jesse Dylan
Senior Director of Business Develoment QLess Director of Business Development Oraclinical  Founder of Wondros


Scientific Advisory Board
  • Beth Ann Baber – PhD, CEO, Nicholas Conor Institute for Pediatric Cancer Research
  • Ian Eslick – PhD, MIT Media Lab
  • Emil Kakkis – PhD, CEO, Ultragenyx
  • Jimmy Lin – PhD, Rare Genomics Institute
  • Christina Waters – PhD, Phillip Morris
  • John Wilbanks – VP of Science, Creative Commons