Leadership

Global Genes™ is a 501(c)(3) non-profit corporation. Our Leadership Team, Board of Directors and Advisory Teams are committed to programs centered on our core mission of working to eliminate the challenges of rare disease.

Global Genes™ Team
 Learn more about the Global Genes Team by clicking their photos
Andrea headshot sized
Nicole Boice Andrea Epstein Amy Grover
Founder & CEO Executive Director Director, Operations
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Carrie Ostrea Christina Fumia Lisa James
Director, Advocacy Director, Marketing & Communications Manager, Tech Strategies
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Kathy O’Connor Katie Mastro Ashley Girtman
Manager, Development Program Manager Program & Event Manager
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Jaymie Rodems Ilana Jacqueline
Coordinator, Marketing & Communications Managing Editor, RARE Daily

 

 

 

 

Board of Directors
 Nicole Boice, Founder & President  John Crowley, Board Member  Natalie Douglas, Board Member
Nicole Boice John F. Crowley Natalie Douglas
Founder & CEO of Global Genes™ CEO of Amicus Therapeutics Parent Advocate Co-founder, Partner and Executive Chairman of Rocket Science
 Wendy White website pic  Hugh Hempel, Board Member  Caroline Loewy, Board Member
Wendy White Hugh Hempel Caroline Loewy
Founder & CEO of Siren Interactive Founder of Solution Therapeutics Parent Advocate EVP & CFO of Tobira Therapeutics Parent Advocate
Barbara Lavery, Board Member Peter Pellizon, Board Member  Norman Schmeltzer, Board Member
Barbara Lavery, Board Chair Peter J. Pellizzon Norman Schmeltzer
President of Zoomedia Founder of Hollencrest Capital O’Connor, Schmeltzer & O’Connor

 

Strategic Advisors
 Jason Omenn, Strategic Advisor Brian Campion, Strategic Advisor  Jesse Dylan, Board Member
Jason Omenn Brian Campion  Jesse Dylan
Senior Director of Business Develoment QLess Director of Business Development Oraclinical  Founder of Wondros

 

Scientific Advisory Board

David Altshuler, MD, PhD
Chief Academic Office, Broad Inst of MIT/Harvard
Professor of Genetics and Medicine, Mass General Hospital and Harvard Medical School

 Beth Ann Baber, PhD, MBA 
Chairman and Chief Executive Officer
The Nicholas Conor Institute

 Hudson Freeze, PhD
Professor and Director, Human Genetics Program
Sanford Children’s Health Research Center
Sanford-Burnham Medical Research Institute

Deb Geraghty, PhD, MBA
Board of Trustees, Emma Willard School
Co-Founder, Cydan, LLC

Peter Goodhand
Executive Director,
Global Alliance for Genomics and Health

Stephen Groft, PhD
Sr. Advisor to the Director,
National Center for Advancing Translation
National Institutes of Health

 Ayesha N. Khalid, MD, FACS
Instructor of Otology & Laryngology
Harvard Medical School
MIT I Sloan School of Management

Harry Leider, PhD, MBA
Chief Medical Officer
Walgreen Company

C. Jimmy Lin, MD, PhD, MHS
President, Rare Genomics Inc.

Jeanette McCarthy, MPH, PhD
Editor In Chief, Genome Magazine
Founder, Precision Medicine Advisors

Sharon Moalem, MD, PhD
CEO, Recognyz Systems Technology

Anthony Philippakis, MD, PhD
Cardiologiest, Brigham and Women’s Hospital
Research Scientist, Broad Inst of MIT/Harvard
Venture Partner, Google Ventures

Ian Phillips, PhD, DSc
Center for Rare Disease Therapies
Professor, Keck Graduate Institute

Inderpal S. Randhawa, MD
Asst Professor, Clinical Pediatrics, UCI Scool of Medicine
Asst Professor of Medicine, UCLA School of Medicine
Miller Children’s Hospital – Long Beach

Katherine Rauen, PhD
University of California, DavisRASophathies Researcher

Christian Rubio, MBA
Communicty Director, SERMO

Ryan Taft, PhD
Director of Scientific Research
Illumina, Inc.

Christina Waters, PhD
Chief Executive Officer
RARE Science

Keith Vaux, MD, PhD
Clinical Chief and Division Director, Medical Genetics
UC San Diego School of Medicine