2026 Leadership Lab
Global Genes is proud to partner with the Termeer Institute to launch Leadership Lab, a full-day immersive experience for rare disease patient advocacy leaders.
November 4, 2026 | Boston, MA
December 2, 2026 | San Diego, CA
Register Boston Register for San Diego
Building Relationships That Move Your Mission Forward
Patient advocacy organizations often have a clear vision for the impact they want to create—but progress can stall when critical relationships aren’t in place, stakeholder priorities aren’t aligned, or partnerships fail to gain momentum.
Whether you’re seeking funding, engaging researchers, building industry partnerships, or expanding your organization’s influence, success often depends on your ability to build trust, navigate competing interests, and create relationships that lead to action.
Join Global Genes and the Termeer Institute for the inaugural Leadership Lab, a new leadership development series designed to help patient advocacy leaders strengthen the relationships that drive meaningful progress.
This event is designed for patient advocacy leaders who are in a leadership role within their advocacy organization.
November 4, 2026
David Rubenstein Treehouse, Harvard University 20 Western Ave Boston, MA 02134
December 2, 2026
Travere Therapeutics 3611 Valley Center Drive, Suite 300 San Diego, CA 92130
Strategic Partnerships & Negotiation
Learn how to:
- Understand what motivates funders, researchers, industry partners, and other stakeholders
- Build trust and credibility
- Create partnerships that advance shared goals
- Navigate difficult conversations and competing priorities
- Recognize common pitfalls that can cause collaborations to stall, lose momentum, or fail to deliver results
Leading Through Relationships
Explore how leaders can:
- Build stronger, more productive relationships across sectors
- Turn influence into action and collaboration into results
- Identify practical next steps to create momentum around their organization’s goals
- Avoid common leadership and relationship pitfalls that can slow progress or undermine trust
You’ll Leave With:
- Practical tools for stakeholder and relationship mapping
- Strategies for building stronger, more productive partnerships
- Insights from experienced leaders who have successfully navigated complex collaborations
- Connections with peers facing similar challenges
- A clearer understanding of how to prevent important work from getting stuck
Have questions about the event or how to get involved? Email [email protected].
Agenda
1:00pm Registration & Welcome
1:45pm Technical Skill Session
3:30pm Leadership Workshop
5:30pm Networking Reception
6:30pm Keynote & Dinner Discussions
Key Topics:
- Strategic Partnerships & Negotiation: Building Relationships that Create Impact
- Leading Across Power Dynamics
- Relationships that Change What’s Possible
Registration Information
Event Details:
Wednesday, November 4, 2026
1:00-8:00pm ET
David Rubenstein Treehouse, Harvard University
Wendesday, December 2, 2026
1:00pm – 8:00pm PT
Travere Therapeutics, San Diego
Cost: $150
Your registration for this in-person event includes the following:
- Event Sessions: Access to keynotes, general sessions & interactive workshops
- Meals: Enjoy snacks and dinner
- Networking Opportunities: Ample opportunities to connect
We recommend attending the event that is closest to you, agenda and topics will be consistent throughout the two events
The 2026 Leadership Labs
owe its success to our valued partner
Thank You to Our 2026 Sponsors
Interested in supporting Leadership Lab?