The RARE Corporate Alliance™ is a collaboration of rare disease stakeholders committed to helping advance efforts benefiting the rare disease community and its constituents.
The mission of the RARE Corporate Alliance is to marry the resources and capabilities of industry and patient communities to improve heath and expedite access to effective therapies for all patients with rare diseases. The goal of the RARE Corporate Alliance™ is to help facilitate collaboration and an information exchange among patients, patient advocacy organizations, health related organizations, industry, payers, policy makers and regulatory agencies. Only with all stakeholders at the table with an open cooperative “we-can” spirit, will we effectively address issues facing the rare disease community. Membership is open to pharmaceutical and biotech companies, industry and academia. Associate membership is available for payors, policy makers and regulatory agencies.
- Patient Education
- Mission: To support the rare disease community in forming, collaborating, mobilizing and being the most effective in their advocacy and engagement efforts.
- Healthcare Professional Outreach
- Mission: To develop a better understanding of the reasons for delayed diagnosis and treatment of rare diseases, creating strategies and tactics to shorten the time to it.
- Patient Access
- Mission:To educate the rare disease community on the details behind reimbursement/pricing for approved rare disease treatments.