Mark your calendar: The RARE Drug Development Symposium 2023
will take place May 1-3, 2023 at the Sheraton Philadelphia Downtown, Philadelphia, PA!

Thank you to all who made the 2022 Rare Drug Development Symposium 2022, presented with Orphan Disease Center of the University of Pennsylvania, a success. Please check back for updates to this page as new content related to the 2022 Symposium will be added.

To learn more about the 2022 Symposium, read our summary report here.

We look forward to seeing you at the 2023 Rare Drug Development Symposium.


A Year-Long Initiative in Rare Drug Development

In addition to activities surrounding the RARE Drug Development Symposium in June, Global Genes is providing educational resources to help advocates and organizations become better equipped to work with researchers and industry partners throughout the drug development process. This includes:

      • Webinar 1:

        More Resources for What Does it Take to Become a Research-Ready Organization with Travere Therapeutics
      • Webinar 2: May 20, 2022 

        More Resources for “Getting Your Community Ready for Clinical Trials”
        with TSC Alliance
      • Post-RDDS Webinar: Financing Research
        Tuesday, October 18th at 4:00pm EST

  • A series of short educational video vignettes discussing topics covered at the RARE Drug Development Symposium

  • A Drug Development Toolkit, including information, infographics, checklists, and videos

Thank you to our webinar sponsor Jazz Pharmaceuticals

Jazz Pharmaceutical

From: 05/01/2023 - To: 05/03/2023

All day event

Sheraton Downtown, 201 N 17th St, Philadelphia, PA 19103

Thank you to our 2022
RARE Drug Development Symposium Sponsors

Gold Sponsor

Silver Sponsors

Bronze Sponsors

Partner Sponsor

Industry-session Sponsor

General Sponsor

Patient Advocate Stipends Sponsor