Rare Drug Development Symposium 2022: Disruptive Innovations in Rare Disease Research

Thank you to all who made the 2022 Rare Drug Development Symposium 2022, presented with Orphan Disease Center of the University of Pennsylvania, a success. Please check back for updates to this page as new content related to the 2022 Symposium will be added.

We look forward to seeing you at next year’s Rare Drug Development Symposium in Philadelphia in June 2023.

A Year-Long Initiative in Rare Drug Development

In addition to activities surrounding the RARE Drug Development Symposium in June, Global Genes will provide educational resources to help advocates and organizations become better equipped to work with researchers and industry partners throughout the drug development process. This will include:

• Three 60-90 minute webinars 
  • Webinar 1: May 12, 2022  6:00pm ET
    What Does it Take to Become a Research-Ready Organization with Travere Therapeutics
    Register Now
  • Webinar 2: May 20, 2022 
    Getting Your Community Ready for Clinical Trials with TSC Alliance
    Register Now
  • Webinar 3: Date/Time TBD
    Financing Research
    More information coming soon!
• A series of short educational video vignettes discussing topics covered at the RARE Drug Development Symposium
• A Drug Development Toolkit, including information, infographics, checklists, and videos

Thank you to our webinar sponsor Jazz Pharmaceuticals