Building awareness and communities to support and find treatments for Rare Diseases
Congratulations to our friends at Abeona Therapeutics Inc. (ABEO), a leading clinical-stage biopharmaceutical company focused on developing therapies for life-threatening rare genetic diseases, who were invited to visit the Nasdaq MarketSite in Times Square to raise awareness for Rare Disease Day this year. In honor of…Continue Reading
Just as the pink ribbon symbolizes breast cancer awareness, the Blue Denim Genes Ribbon® is a perfect universal sign for rare and genetic disease awareness and helps unify a fractured community of thousands of small diseases who have not had a collective voice. Whether you’re…Continue Reading
Perla Portillo is a mom on a mission. Along with her husband, Jorge, the couple hosted an event in honor of their oldest daughter, Alanis. She is a beautiful 13 year old girl who has a rare, genetic disorder. “We still don’t have a proper…Continue Reading
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