RARE Patient Advocacy Summit




A rare diagnosis changes everything.  You weren’t given a playbook on how to cope or take that next step, and you certainly weren’t handed a blueprint on how to build an advocacy organization or successfully bring a therapy to market. The good news is that rare disease advocates are some of the most inspiring, innovative activists on the planet. Global Genes works to bring the community together to share best practices, create important introductions, and help catalyze powerful collaborations.  

This is why Global Genes hosts the RARE Patient Advocacy Summit annually! The goal of the RARE Patient Advocacy Summit is for patients, caregivers, and advocates to walk away equipped with actionable next steps whether you have been recently diagnosed or have been advocating in rare disease for decades.  



Click here to view the 2016 RARE Patient Advocacy Summit Stats!


 2016 Summit Recap