About Us
Career Opportunities
Our passion runs deep. Helping people around the world isn’t just a tagline for us — we do it for real. Discover the possibilities.
Join Our Team
We are a team of dedicated advocates who work to build awareness, educate the global community, and provide critical connections and resources that equip advocates to become activist for their disease. We are always interested in hearing from those that have a passion for our mission and skill and experience that may contribute to our achieving our mission.
Please submit resumes and cover letters to [email protected].
Hope. It’s in our genes.™
Director, Development
Global Genes is looking for a Director, Development who will be responsible for generating and stewarding revenue to support Global Genes’ core educational programs and membership initiatives. This role, working closely with Global Genes’ founder and Chief Mission Officer, sits at the intersection of fundraising, partnership strategy, and program design, ensuring that Global Genes meets its financial goals while delivering high-value, mission-aligned programs to corporate and community partners.
Program Manager, Research Data Operations
Global Genes is looking for a Program Manager, Research Data Operations for its RARE-X
Research Program who will ensure timely completion of project deliverables for a diverse set of
program and research initiatives. This role sits at the intersection of data management, project
management, and partner engagement, driving high-quality research data access while
upholding compliance and contractual obligations.