About Us
Global Advocacy Alliance Events
Global Advocacy Alliance members have access to exclusive educational webinars focusing on topics that help rare disease foundations become better equipped to serve the community
RARE Learning Lab is an exciting benefit available only to Global Advocacy Alliance members
Educational webinars will focus on relevant topics identified by feedback from members. RARE Learning Labs (formerly Lunch & Learns) are an additional opportunity to provide support and education to our members.
Sample topics include research poster presentations and how to expand your organization from volunteers to paid staff.
You can sign up to participate in all of these events, or just choose a few topics you’re interested in. If you have any ideas or suggestions of topics to focus on during these meetups, please feel free to forward your ideas to [email protected].
Upcoming Global Advocacy Alliance Events
2025 Q1 Members Call
Thursday, March 6, 2025
Time: 5:00pm ET
Join us for our Q1 GAA Update call. During this session you’ll receive some exciting updates and have the opportunity to network with fellow GAA members. Come prepared to share about the work your organization does, any challenges you’re facing and any wins you want to celebrate!
2025 Q2 Members Call
Tuesday, June 24, 2025
Time: 12:00pm ET
Join us for our Q2 GAA Update call. During this session you’ll receive some exciting updates and have the opportunity to network with fellow GAA members. Come prepared to share about the work your organization does, any challenges you’re facing and any wins you want to celebrate!
2025 Q3 Members Call
Thursday, September 11, 2025
Time: 4:00pm ET
Join us for our Q3 GAA Update call. During this session you’ll receive some exciting updates and have the opportunity to network with fellow GAA members. Come prepared to share about the work your organization does, any challenges you’re facing and any wins you want to celebrate!
2025 Q4 Members Call
Tuesday, December 2, 2025
Time: 10:30am ET
Join us for our Q4 GAA Update call. During this session you’ll receive some exciting updates and have the opportunity to network with fellow GAA members. Come prepared to share about the work your organization does, any challenges you’re facing and any wins you want to celebrate!
Thank you to all of our Global Advocacy Alliance members for your support of these events.
Not a Global Advocacy Alliance Member Yet?
You can learn more and sign up your organization today.
Join Now*Important Note: To attend these online events, you must be a registered member of the Global Advocacy Alliance. The Global Advocacy Alliance has evolved and replaced the Foundation Alliance you were previously a part of, and the eligibility you had through the Foundation Alliance to attend Lunch & Learns is no longer active.
Past Global Advocacy Alliance Events
Watch Previous Webinars and Learning Labs:
Give An Hour
During this session, you’ll learn more about who Give an Hour is and how you can leverage their services and resources to better support your community
Watch WebinarRARE Concierge: Global Genes Patient Services
Learn about the Global Genes Patient Services team and how they can compliment or supplement the work you’re doing for your rare disease community.
Watch WebinarHelp Hope Live: Trusted Medical Fundraising
During Help Hope Live’s session you learn why they are a trusted medical fundraising nonprofit. Get examples of successful fundraisers and the long list of items they can help you fundraise towards.
Watch WebinarGiving Illness a Timeout With A Kid Again
Hear from A Kid Again as they share information about their adventures, who they serve, how to enroll/refer families, and where they are located.
Watch WebinarIntroduction to Genetic Diagnostics
During this session, you’ll hear from Shruti Mitkus, Ph.D., about genetic testing and gene therapy, including what a gene variant is, the different types of genetic testing, the difference between exome and genome sequencing, short-read and long-read sequencing methodologies, and how variant classification affects testing.
Watch WebinarLunch & Learn: Financial Resources and Financial Navigation
During this session, you can expect to learn:
* Who Patient Advocate Foundation is and what they do?
* What is PAF Case Management, and how can you access it?
* About available financial resources and how to navigate them
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Join the Alliance to Participate
To attend upcoming online events, you must be a registered member of the Global Advocacy Alliance.