About Us
Sponsorship Opportunities
Global Genes is a globally connected community committed to eliminating the challenges of rare disease.
Together with our partners, we help people find and build communities, gain access to information, services, care and resources, and provide hope and support for the more than 400 million people affected by rare disease around the globe.
RARE Corporate Alliance
The RARE Corporate Alliance is a partnership of rare disease industry stakeholders committed to forging and supporting collaboration between industry and patient communities.
Email us to become a memberRARE Drug Development Symposium
Innovative approaches to accelerate new therapies in rare, in partnership with Boston Children’s Hospital.
Support RARE Drug Development SymposiumVirtual Advocacy Exchange
The Virtual Advocacy Exchange is a year-long virtual event addressing rare advocate needs, with intentional networking opportunities.
Support Virtual Advocacy ExchangeRARE Concierge
Personalized patient services program offering 1:1 support for people affected by rare diseases.
Educational Resources
Actionable education guides responding to a common need we have identified in the rare community.
These guides will offer a short overview of the topic along with pull quotes from experts and community members with lived experience. This is followed by links to several related resources across media types including videos, blogs, podcasts and books. These include Global Genes Resources and those from the community.
RARE-X Research Program
The RARE-X Platforms removes barriers for patients to share data that is patient owned.
Support RARE-X Research ProgramXcelerate RARE: Open Science Data Challenge
Researchers collaborate in competitive environment to advance understanding of genetic variants across disorders.
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