Daniel S. Levine

Daniel S. Levine is editor of Rare Daily. You can contact him by sending email to editor@globalgenes.org

A Victory for One
In 1886, the physician Jonathan Hutchinson examined a six-year-old patient who lacked hair and had the withered skin of an old man. Later,… Continue Reading
Rare Leader: Elisa Seeger, Founder of the Aidan Jack Seeger Foundation
The Basics Name: Elisa Seeger Title: Founder Organization:  Aidan Jack Seeger Foundation Disease focus:  Adrenoleukodystrophy, or ALD, is… Continue Reading
FDA Grants Synlogic Fast-Track Designation for Synthetic Biotic to Treat PKU
Rare Daily Staff The U.S. Food and Drug Administration granted Synlogic Fast Track designation to its experimental therapeutics SYNB1618, a… Continue Reading
FDA Approves Otsuka’s Drug for Rare Kidney Disease
Rare Daily Staff The U.S. Food and Drug Administration approved Otsuka Pharmaceutical Jynarque, the first drug treatment to slow kidney… Continue Reading
Former Alexion Execs Raise $37 Million to Launch Rare Disease Drug Developer Rallybio
Rare Daily Staff Newly unveiled Rallybio, a rare disease drug developer co-founded by three former Alexion Pharmaceutical executives, said… Continue Reading
Takeda Closes in on Shire with $64 Billion Bid
Rare Daily Staff The board of rare disease drugmaker Shire said it is prepared to recommend that shareholders accept a sweetened $64 billion… Continue Reading
Video: A Fourth Grader Explains What It’s Like to Have Autism
George’s Yionoulis shared this video with his fourth grade classmates to help them understand his autism and why he behaves the way he… Continue Reading