Daniel S. Levine

Daniel S. Levine is editor of Rare Daily. You can contact him by sending email to editor@globalgenes.org

FDA Expands Approval of Vertex’s CF Drug Kalydeco to Include Kids 12 to Less than 24 Months
Rare Daily Staff The U.S. Food and Drug Administration expanded the approval of Vertex Pharmaceuticals’ cystic fibrosis drug Kalydeco to… Continue Reading
FDA Grants Wave Life Sciences Rare Pediatric Disease and Orphan Designations for DMD Candidate
Rare Daily Staff The U.S. Food and Drug Administration granted Wave Life Sciences Rare Pediatric Disease and Orphan Drug designations for… Continue Reading
Rare Leader: Katheryn Elibri Frame, Founder and President, CDKL5 Research Collaborative  
The Basics Name: Katheryn Elibri Frame Title: Founder and president Organization:  CDKL5 Research Collaborative Disease focus:  CDKL5… Continue Reading
Perlara Enters Collaboration with the University of Notre Dame Focused on Cori Disease and Pompe Disease
Rare Daily Staff Perlara said it has entered into a collaboration with the University of Notre Dame and the Warren Family Research Center… Continue Reading
Spotting Birds of a Feather
John Atkinson became a birder in fifth grader when his teacher told the students to put away their science books and follow her outside.… Continue Reading
Sigilon Therapeutics Names Rare Disease Veteran Rogerio Vivaldi as CEO
Rare Daily Staff Sigilon Therapeutics said that it has named Rogerio Vivaldi as its CEO to replace Paul Wotton, who has stepped back from… Continue Reading
Orchard Therapeutics Raises $150 Million to Advance Gene Therapy Pipeline
Rare Daily Staff Orchard Therapeutics said it completed an oversubscribed series C financing of $150 million to advance its gene therapy… Continue Reading
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