Daniel S. Levine

Daniel S. Levine is editor of Rare Daily. You can contact him by sending email to editor@globalgenes.org

Global Genes Rare Disease Stock Index Drops 0.8% During Week
The Global Genes Rare Disease Stock Index finished the week down 0.8 percent, while the major indicies all managed to stay in positive… Continue Reading
GalXC Quest: Dicerna Bets on Its Unqiue Approach to RNAi
A range of RNAi therapies are moving through clinical development and toward the market providing the promise of new ways to treat genetic… Continue Reading
Rare Disease Trailblazers’ Lawsuit Offers Lessons for Others 
Shortly after I first began my involvement in the rare disease community, I was taken by the story of Chris and Hugh Hempel, the parents of… Continue Reading
Rare Leader: Luke Rosen, Founder of KIF1A.org
The Basics Name: Luke Rosen Title: Founder Organization: KIF1A.org Disease focus: KIF1A mutations, which cause a degenerative neurological… Continue Reading
ICER Analysis Finds Spark Gene Therapy Priced Too High
Rare Daily Staff The Institute for Clinical and Economic Review, an independent non-profit research institute that analyzes the evidence on… Continue Reading
Video: What Should I Say?
What should you say when you see someone with disabilities? Bo Bigelow says that it’s like how you should treat someone who’s pregnant.… Continue Reading
Upcoming Events on the Rare Calendar
February 9-10, 2018 The Boler-Parseghian Center for Rare & Neglected Diseases at the University of Notre Dame holds its annual Rare Disease… Continue Reading