Ilana Jacqueline

(Editor) Ilana Jacqueline is the Managing Editor of The RARE Daily at Global Genes. She assists the patient community in getting their stories heard and shared so that they can connect, educate and inspire. Ms. Jacqueline has been reporting on health and other issues both online and in print for the last ten years. She has personal experience as a rare disease patient with Primary Immune Deficiency Disease and keeps a blog discussing her experiences at www.letsfeelbetter.com.

In the past, Ms. Jacqueline has written for The Palm Beach PostThe Sun-SentinelThe Huffington PostCosmopolitanMarie Claire, Everyday HealthAOL, and her first book, Overcoming Chronic Illness (Demos Health) will hit shelves in August 2015.

Ilana Jacqueline is a South Florida native who has never seen snow, decorates about three months too early for the holidays and is torn over whether or not she wants to have children…or maybe just more poodles?

You can see more of her work at The Huffington Post, Cosmopolitan and, of course, on her blog Let’s Feel Better.

Want to reach out? You can email Ilana at IlanaJ@Rareproject.org.

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Today is FH Awareness Day: Celebrate On Twitter!
FH Awareness Day (est. 2012) is a campaign initiated by the FH Foundation to raise awareness of FH in the general public. This annual event… Continue Reading
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Wrapping Up Day 1 of the 2016 Global Genes Rare Patient Advocacy Summit
“The game changers in #raredisease are the people in this room & millions around the world like you” @peter_pcg #2016GGSummit The… Continue Reading
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Science Magazine: Rare Diseases and Rare Opportunities
On 24 October 2014, after a daylong meeting to plan a rare disease clinical trial, Raymond Wang hopped into a cab and pulled out his… Continue Reading
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Nebraska Boy with Headache Diagnosed with Rare Disease
What his mother first thought was a harmless headache landed 7-year-old Somolon Pyle in the hospital, where he fell into a coma and was… Continue Reading
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RDR: FDA Approves Cuvitru for Primary Immunodeficiency Disorders
By Andrew Black at Rare Disease Report The FDA has approved Shire’s Cuvitru  [Immune Globulin Subcutaneous (Human), 20% Solution] for… Continue Reading
Writing a prescription for good health
The 5 Things Rare Patients Think Before Meeting a New Doctor
Ever wonder what goes through a a rare disease patient’s mind before they meet a new doctor? The worries? The fears? The hope? Here’s a… Continue Reading
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Duchenne Community Rejoices over FDA Approval of Eteplirsen!
CureDuchenne applauds the first-ever approval of a drug in the U.S. to treat Duchenne muscular dystrophy. The drug, Exondys 51… Continue Reading