Ilana Jacqueline

(Editor) Ilana Jacqueline is the Managing Editor of The RARE Daily at Global Genes. She assists the patient community in getting their stories heard and shared so that they can connect, educate and inspire. Ms. Jacqueline has been reporting on health and other issues both online and in print for the last ten years. She has personal experience as a rare disease patient with Primary Immune Deficiency Disease and keeps a blog discussing her experiences at www.letsfeelbetter.com.

In the past, Ms. Jacqueline has written for The Palm Beach PostThe Sun-SentinelThe Huffington PostCosmopolitanMarie Claire, Everyday HealthAOL, and her first book, Overcoming Chronic Illness (Demos Health) will hit shelves in August 2015.

Ilana Jacqueline is a South Florida native who has never seen snow, decorates about three months too early for the holidays and is torn over whether or not she wants to have children…or maybe just more poodles?

You can see more of her work at The Huffington Post, Cosmopolitan and, of course, on her blog Let’s Feel Better.

Want to reach out? You can email Ilana at IlanaJ@Rareproject.org.

University of Louisville Grad Fulfills Lifelong Dream Despite Living with MPS1
On Saturday, 29-year-old Ryan Dant graduated from his dream school, the University of Louisville. And for him, the relatively ordinary act… Continue Reading
Global Genes® to Host 6th Annual Rare Patient Advocacy Summit September 14 – 15, 2017, Hotel Irvine, Irvine, California
On September 14-15, 2017, more than 700 rare disease stakeholders from around the globe will gather at Hotel Irvine in Irvine,… Continue Reading
RARECast: Accelerating Rare Disease Drug Discovery
For many rare disease patients, the drug discovery and development process moves slower than the diseases they are battling. Earlier this… Continue Reading
Rare Disease Report: China’s Rare Disease Policy (or Lack Thereof)
By James Radke of Rare Disease Report China is about to publish its first list of national rare diseases.   Given the population of China… Continue Reading
FDA Approves Genentech’s Actemra (Tocilizumab) for Giant Cell Arteritis
Genentech, a member of the Roche Group announced today that the U.S. Food and Drug Administration (FDA) has approved… Continue Reading
The Balancing Act: Orphan Drugs Conquering Rare Disease One-By-One at Conference
The Orphan Drug Conference USA 2017 welcomed thousands of attendees as science, industry, big pharma, and patient advocacy groups met in… Continue Reading
FDA Grants Priority Review Status to Ultragenyx
Ultragenyx Pharmaceutical Inc. (NASDAQ:RARE), a biopharmaceutical company focused on the development of novel products for rare and… Continue Reading
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