Ilana Jacqueline

(Editor) Ilana Jacqueline is the Managing Editor of The RARE Daily at Global Genes. She assists the patient community in getting their stories heard and shared so that they can connect, educate and inspire. Ms. Jacqueline has been reporting on health and other issues both online and in print for the last ten years. She has personal experience as a rare disease patient with Primary Immune Deficiency Disease and keeps a blog discussing her experiences at

In the past, Ms. Jacqueline has written for The Palm Beach PostThe Sun-SentinelThe Huffington PostCosmopolitanMarie Claire, Everyday HealthAOL, and her first book, Overcoming Chronic Illness (Demos Health) will hit shelves in August 2015.

Ilana Jacqueline is a South Florida native who has never seen snow, decorates about three months too early for the holidays and is torn over whether or not she wants to have children…or maybe just more poodles?

You can see more of her work at The Huffington Post, Cosmopolitan and, of course, on her blog Let’s Feel Better.

Want to reach out? You can email Ilana at

SELLAS™ Life Sciences Announces Positive Interim Phase II Results from its WT1 Immunotherapeutic Anti-cancer Treatment in Multiple Myeloma Patients
SELLAS Life Sciences Group (SELLAS or the Company), a late-stage biopharmaceutical company focused on the development of novel cancer… Continue Reading
RARECast: Abeona Advancing Pipeline of Gene Therapies for Rare Diseases
Gene therapy has the promise of radically changing the landscape for rare disease patients who are without therapeutic options today. Abeona… Continue Reading
University of Arkansas to Lead $1.4M Study on Rare Disease
The University of Arkansas will use a $1.4 million grant to study the origin of Leigh’s Disease, a rare and incurable disease that affects… Continue Reading
Woman With Rare Condition Says Social Media Saved Her Life
(Source) An Evansville woman suffering from an extremely rare condition feels as if Facebook saved her life. Natalie Embry’s condition is… Continue Reading
2016 RARE Champion of Hope Dr. Phil Reilly to Keynote Upcoming Rare Disease Meeting in Washington, DC
The EveryLife Foundation for Rare Diseases is convening its annual Community Congress meeting in Washington, D.C. on November 16th. The… Continue Reading
FDA Helps Fund 21 Early Phase Trials for Rare Disease Treatments
(Source) by Zachary Brennan The US Food and Drug Administration (FDA) on Monday announced it is awarding $23 million in research grants for… Continue Reading
Young Man with N.O.R.S.E Experiences Sudden Seizures And Long Rehabilitation
By Luke Boulianne It began on January 11th, 2014, shortly after returning from a ski trip in Quebec. I immediately began feeling ill and… Continue Reading