Ilana Jacqueline

(Editor) Ilana Jacqueline is the Managing Editor of The RARE Daily at Global Genes. She assists the patient community in getting their stories heard and shared so that they can connect, educate and inspire. Ms. Jacqueline has been reporting on health and other issues both online and in print for the last ten years. She has personal experience as a rare disease patient with Primary Immune Deficiency Disease and keeps a blog discussing her experiences at

In the past, Ms. Jacqueline has written for The Palm Beach PostThe Sun-SentinelThe Huffington PostCosmopolitanMarie Claire, Everyday HealthAOL, and her first book, Overcoming Chronic Illness (Demos Health) will hit shelves in August 2015.

Ilana Jacqueline is a South Florida native who has never seen snow, decorates about three months too early for the holidays and is torn over whether or not she wants to have children…or maybe just more poodles?

You can see more of her work at The Huffington Post, Cosmopolitan and, of course, on her blog Let’s Feel Better.

Want to reach out? You can email Ilana at

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25,000 Maltese Citizens Suffer from a Rare Disease
(SOURCE) The Maltese government is promoting cooperation in research into rare diseases while holding the presidency of the Council of the… Continue Reading
FDA Approves First Treatment for Rare Form of Skin Cancer
The U.S. Food and Drug Administration today granted accelerated approval to Bavencio (avelumab) for the treatment of adults and pediatric… Continue Reading
RARECast: Girl with Rare Disease Inspires Search for Bone Marrow Donors
Hallie Bae Barnard is an eight-year-old girl with Diamond Blackfan Anemia, a rare condition that has set her family and friends on a search… Continue Reading
New Global Genes Toolkit: Finding Your Fundraising Strategy
Global Genes released a new patient toolkit this month on helping patients and advocates in finding their fundraising strategies. This… Continue Reading
The Balancing Act to Air Segment on Alpha-1 Antitrypsin Deficiency
Imagine– a rare disease that’s rarely diagnosed– because it mimics so many other diseases. We’re talking about Alpha-1 Anti-TRIP-sin… Continue Reading
Global Genes and EveryLife Foundation Announce First-Ever RARE on the Road – Rare Disease Leadership Tour
 Leading rare disease patient advocacy organizations Global Genes – Allies in Rare Disease and the EveryLife Foundation for Rare… Continue Reading
Allergan Signs Deal with Editas for Gene-Editing-Based Eye Treatments
Allergan plc said on Tuesday it would get exclusive access and the option to license up to five of Editas Medicine Inc’s experimental… Continue Reading