Ilana Jacqueline

(Editor) Ilana Jacqueline is the Managing Editor of The RARE Daily at Global Genes. She assists the patient community in getting their stories heard and shared so that they can connect, educate and inspire. Ms. Jacqueline has been reporting on health and other issues both online and in print for the last ten years. She has personal experience as a rare disease patient with Primary Immune Deficiency Disease and keeps a blog discussing her experiences at www.letsfeelbetter.com.

In the past, Ms. Jacqueline has written for The Palm Beach PostThe Sun-SentinelThe Huffington PostCosmopolitanMarie Claire, Everyday HealthAOL, and her first book, Overcoming Chronic Illness (Demos Health) will hit shelves in August 2015.

Ilana Jacqueline is a South Florida native who has never seen snow, decorates about three months too early for the holidays and is torn over whether or not she wants to have children…or maybe just more poodles?

You can see more of her work at The Huffington Post, Cosmopolitan and, of course, on her blog Let’s Feel Better.

Want to reach out? You can email Ilana at IlanaJ@Rareproject.org.

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Global Genes® Expands Board of Directors & Medical and Scientific Advisory Board To Amplify Efforts for Rare Disease Community
ALISO VIEJO, Calif. — December 8, 2016 — Global Genes®, one of the world’s leading nonprofit rare disease patient advocacy… Continue Reading
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The Chive: From the Sidelines to the Spotlight
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Join RDLA For a Webinar on Dec. 7th, More Information on Travel Stipends
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Life with Lowe: Practice Makes Progress
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My Life with Ehlers-Danlos: Getting Underwear for Christmas
Do you remember the anticipation of seeing an unusually shaped package wrapped under the Christmas tree (or wherever your holiday gifts… Continue Reading
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Takeda and Lightstone Join Forces to Fund and Launch a Neuroscience Start Upstart: “Cerevance”
Japanese Big Pharma Takeda and VC Lightstone have come together to launch Cerevance, a new company focused on neuroscience R&D for… Continue Reading
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Sick But Social: But Seriously, Stop Kissing Me
By Stacey Philpot My husband has an immune system made of steel. I’ve often wondered if he has a stash of kryptonite hidden underneath the… Continue Reading