Ilana Jacqueline

(Editor) Ilana Jacqueline is the Managing Editor of The RARE Daily at Global Genes. She assists the patient community in getting their stories heard and shared so that they can connect, educate and inspire. Ms. Jacqueline has been reporting on health and other issues both online and in print for the last ten years. She has personal experience as a rare disease patient with Primary Immune Deficiency Disease and keeps a blog discussing her experiences at www.letsfeelbetter.com.

In the past, Ms. Jacqueline has written for The Palm Beach PostThe Sun-SentinelThe Huffington PostCosmopolitanMarie Claire, Everyday HealthAOL, and her first book, Overcoming Chronic Illness (Demos Health) will hit shelves in August 2015.

Ilana Jacqueline is a South Florida native who has never seen snow, decorates about three months too early for the holidays and is torn over whether or not she wants to have children…or maybe just more poodles?

You can see more of her work at The Huffington Post, Cosmopolitan and, of course, on her blog Let’s Feel Better.

Want to reach out? You can email Ilana at IlanaJ@Rareproject.org.

CARES Foundation Works to Support the Congenital Adrenal Hyperplasia Community
(SOURCE) While the CARES Foundation is completely unknown to many people, there is a small but significant group of the population that… Continue Reading
Patient-Inspired Research Uncovers New Link to Rare Disorder
Meeting a young patient with Zellweger syndrome, a rare, life-threatening genetic disease, started a scientific investigation that… Continue Reading
NPR: A Couple’s Quest To Stop A Rare Disease Before It Takes One Of Them
by Rae Ellen Bichell In 2010, Sonia Vallabh watched her mom, Kamni Vallabh, die in a really horrible way. First, her mom’s memory… Continue Reading
Project Sleep Announces Winners of 2017 Jack & Julie Narcolepsy Scholarship
Project Sleep is proud to announce the 11 recipients of the 2017 Jack & Julie Narcolepsy Scholarship, a national scholarship program… Continue Reading
Gottlieb’s Aggressive Plans to Streamline the Orphan Drug Review Process
Thanks to Rare Disease Report for this article. On June 20, 2017, Food and Drug Administration (FDA) Commissioner Scott Gottlieb,… Continue Reading
2017 Rare Artist Contest Now Accepting Entries – Submit Your Work Today!
The EveryLife Foundation for Rare Diseases is excited to announce that the ninth annual Rare Artist contest is now open for submissions.… Continue Reading
Rare Disease Patient and Lawyer: “I Want to Walk Again”
By Paula J. Owen (Source) It is a rare, inherited, progressive disease affecting one in 50,000 that results in loss of ambulation six to… Continue Reading
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