Catching Up with the Rare Daily: Genetic Disorders UK, Pediatric Palliative Care & Congres
December 19, 2014
Related
Top 10 Takeaways from the 2023 RARE Health Equity Forum
Whether you attended in person or watched the live stream, we hope that you now have ideas […]
Read moreTop 10 Takeaways from the 2023 RARE Advocacy Summit
Did you LEVEL UP while attending or live streaming the 2023 RARE Advocacy Summit? We certainly did! […]
Read moreCyclo Therapeutics and Applied Molecular Transport Agree to Merge
Rare Daily Staff Cyclo Therapeutics, a clinical stage company focused on developing therapies for rare and neurological […]
Read moreGlobal Genes Team Collaborates with Homocystinuria Community and Researchers on Report
The Homocystinuria (HCU) community, Dr. Kim Chapman (Children’s National Rare Disease Institute), Dr. Mary Chapman (UPMC Children’s […]
Read moreBreakthroughs Begin with You: Cure SMA Celebrates Spinal Muscular Atrophy Awareness Month
August is Spinal Muscular Atrophy (SMA) Awareness Month, so Global Genes invited Cure SMA, a Global Advocacy […]
Read moreFive Resources For Grieving
August 30 is National Grief Awareness Day. As there are many types of grief and no two […]
Read moreAutoinflammatory Alliance: Bringing Hope and Changing Lives For Those Living With Autoinflammatory Disease
August is Autoinflammatory Disease Awareness Month. One of the more common rare diseases that falls into the […]
Read moreAutoinflammatory Disease: The Invisible Epidemic
August is Autoinflammatory Disease Awareness Month. One of the more common rare diseases that falls into the […]
Read moreImplementing a Decentralized Clinical Trial Design for Children with SCN2A & SCN8A Developmental and Epileptic Encephalopathies (DEEs)
contribution from Praxis Precision Medicines Praxis Precision Medicines is a clinical biopharmaceutical company with the largest portfolio […]
Read more