June Poetry Contest Entries- Week 3

 

Three years ago today
As we sat in the doctor’s office
Hands clasped together
I knew before he spoke with solemn voice
“You have CADASIL.”

Three mere words
An acronym of three syllables
Altered my life and that of my husband
Further tilting our family’s world
But we had answers, finally.

That day, never forgotten
Marked each year thereafter
Without celebration
Three will become four, God willing
The clock will carry on.

A future in haze
Unpredictable, bittersweet
Yet bringing a fresh perspective.
I envision the cure
And embrace the challenge.

 

Now, only time will tell…

Give up, Give in, it’s all in your head.
These are the words so often said,
By doctors, friends and family alike
wanting me to give up,
Not carry on the fight.

Hold on, wait a minute, repeat what you’ve said.
No, No NO. ITS NOT IN MY HEAD,
It’s not growing pains
That stage has been and gone.
But where is the answer there has to be one.

Doctor after doctor the same answer was told.
I’m sorry, I don’t know, And you’re not really old.
So it isn’t your age, your tests are all clear;
Maybe it will settle we shall give it a year.

Well that must be it then, I must be going mad,
Otherwise answers the doctors would have had,
But hold on there’s someone else who might have a clue,
They might hold the key and know what to do.

Yes there’s the answer its lies within your genes
It won’t show up in on any screens or machines.
Over the years we had no idea,
But the answer was there and now it’s so clear.

I shall keep fighting each and every year,
Until awareness is raised and the answers are clear.
I will pass the message to never give up,
you never know which year will bring you some luck.

Everyone keep fighting and never lose hope
We all have this life because we can cope!!!

The woods are filled with so much spirit
It’s so thick, you can smell and see and hear it
Life abundant above and below
Surrounded by all that can grow.

Amongst the trees time slips away
Burdens drop and society fades
All that is real comes to the fore
To make an escape just step through the door.

Locked away behind the timbers
Is a world nobody remembers
Passed over on the way to school
Keeping in step within our rule.

In suspension the past can be
With no reference to industry
Biblical times or yesterday
Appear the same indefinitely.

Life becomes filled with chores
Shopping malls and clothing stores
Working to pay for what we desire
Selling our time until you retire.

Life becomes a long conquest
Consumption overtakes the rest
Payments and plastic become the norm
Repetitious days assume their form.

I break the cycle out in the stands
Away from logos and name brands.
Out in the fields we are all the same
Bereft of ego, fortune and fame.

Grounded by the beauty of heaven
Here on earth we have been given
A place to be true to your soul
Regardless of your social role.

Overlook and you might miss
Total and enlightened bliss
Out below the boughs and branches
Where the grace of nature dances.

As I wake to the sounds of the laughter of young,
I hold onto pain by the tip of my tongue,
Mummy they call as I struggle to rise,
I get to my feet and to my surprise,
Today is a good day my pain, not so bad,
My babies they need me, and not someone sad,
The cuddles and kisses make everything go,
As i’v Feeds to turn off as my youngest won’t grow
I wake to see tubes and scars every day,
Perseverance through pain is just my way,
My sons heart is broken and he too suffers pain,
My daughter so small that we changed her name
So I push all I can to prove I am strong
To show all these around me that I too can belong