“Little Big Shots” Star, Gavin R. Stevens, Talks Foundation for Leber’s Congenital Amaurosis (LCA)

April 5, 2017

Gavin Stevens, who appeared on this season’s “Little Big Shots,” was born with a very rare genetic retina condition called Leber’s Congenital Amaurosis (LCA). There is no cure, YET. Research is promising, and his organization is determined to move forward with fundraising for a cure. There are only 150 individuals in the United States with this genetic mutation.

When Gavin was diagnosed with LCA , his family was told Gavin’s gene was unknown. They hoped and prayed for a miracle. The miracle happened. They can now openly and actively pursue treatment for Gavin Robert Stevens, who carries the 18th known gene to cause Leber’s Congenital Amaurosis (LCA-NMNAT1).

“It’s because of our amazing research geneticists, Dr. Chiang, here in America, as well as Beijing, China that Gavin’s gene was found. But it will largely be due to our GROUPIES why a cure may in fact happen for our boy!” reads their website. “Those who support near and far, and our family who is by our side every step of the way. With God’s grace, we are the reason we will be able to make a substantial donation towards this research, that can one day allow Gavin to see things he never has.”

Learn more about Gavin, his foundation, and what you can do to help contribute to finding a cure at

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