Parents Win Dispute Against Kaiser Permanente – Child with Rare Moyamoya Brain Disease To Be Treated at Stanford

A win for the parents of a 3-year-old girl from Roseville, CA, with a rare disease called Moyamoya have settled a dispute with Kaiser Permanente to allow her to be treated by a doctor outside of the HMO’s network.

Sweet little Evangeline Burror has a neurological disease called Moyamoya that cuts off the blood supply to two major arteries to the brain.  Stanford University has a center that treats Moyamoya patients but Kaiser wanted to do the surgery on the girl even though the expert on the condition is at Stanford.

Kaiser has a well qualified surgeon but he had not performed enough of the surgeries compared to the doctor at the Moyamoya center at Stanford.

The parents decided to fight to get treatment outside the HMO and won!

More info from FOX40.