Rare Recap: Here’s How Some of You Spent World Rare Disease Day!
March 5, 2015
Millions participated in this year’s World Rare Disease Day! At Global Genes, we love to see the rare community come together for a great cause–and come together you did! We’re proud to bring you a few stories of how the day was spent around the world. Stay tuned to The RARE Daily in the coming weeks to see even more recaps. Want to share your event, fundraiser, or awareness activity with us? Submit your story here for a chance to be in our next post!
With the help of school counselor Cheryl Laneader, M Ed., Students decorated jeans at Oak Knoll Elementary in Williamstown, NJ, and hung them across the building, leaving a few on display in the media center. They also had a Hat & Jean fundraising day for rare disease. Great job!
Delegate Anthony O’Donnel and House Speaker Delegate Michael Busch rallied for rare disease by ordering a House Resolution. It was read on the General Assembly Floor at the State House in Annapolis.
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