Save the Date: Re (ACT) Community Hosts World Rare Disease Day Discussion

December 22, 2016

To mark the occasion of Rare Disease Day 2017Rare Diseases International, the Global Alliance of Rare Disease Patients, in partnership with the BLACKSWAN Foundation, the Swiss Foundation for Research on Orphan Diseases, and EURORDIS-Rare Diseases Europe, invite you to join people living with a rare disease and policy makers at a unique face-to-face discussion.

The event is the first of its kind to be organised in Geneva and will gather international experts in the fields of public health, human rights, epidemiology, scientific research and patient advocacy to discuss why and how rare diseases should be included in the global health agenda.

There is no registration fee for this event. Please be advised that accommodation and travel expenses are not covered by the organisers.

After registering, you will receive a confirmation email closer to the date of the event. Please be aware that places are limited – you will need to receive confirmation in order to attend.


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