You Can Now Register for NTSAD’s 2016 Annual Family Conference

January 20, 2016

The Annual Family Conference is a highlight of NTSAD’s Family Service program with a goal to
empower, support, and connect our families affected by Tay-Sachs, Canvan, Sandhoff, and GM1.
New programs for 2016 include:
  • Families Collaborating in Research session where information will be gathered from the experts – the families and affected individuals – about how  the diseases affect them.
  • Webcasting of the Research Update session for families around the world who are unable to attend in person. Other sessions will be recorded and shared later.


Make your hotel reservations here.

Be sure to plan your travel to arrive by Wednesday night or early Thursday morning as conference sessions will begin on Thursday, April 7th. A session program will be published soon along with a new conference registration fee.

Helping Hand Grants will be available at the end of December, however there will be no grants available for travel as the number of requests are anticipated to increase due to the location of the conference. Learn more about the Helping Hand Grants below.

Stay tuned to the NTSAD Facebook page, weekly Topic of the Week emails and here for any breaking news regarding the conference. If you have questions, please call the NTSAD office at (617) 277-4463.

Thursday, April 7 to Sunday, April 10, 2016

Rosen Shingle Creek
9939 Universal Blvd
Orlando, Florida 32819

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