Board of Directors


2016 Board of Directors

Natalie Douglas, Board Member

Wendy White – Board Chair
Natalie Douglas – Board Vice Chair
Nicole Boice
Parent Advocate CEO, Healthcare at Home

 Founder & CEO,

Global Genes


Hugh Hempel, Board Member
John F. Crowley
Brad Margus
Hugh Hempel
Chairman of the Board,
CEO of Amicus Therapeutics
Parent Advocate
Co-Founder and CEO of Cerevance
 Founder of
Solution Therapeutics
Parent Advocate
Caroline Loewy, Board MemberPeter Pellizon, Board Membernauman-shah-border
Caroline Loewy
Peter J. Pellizzon
Nauman Shah
Biotechnology Executive/Consultant, Co-Founder, KCNQ2 Cure Alliance, Parent Advocate
Founder, Hollencrest Capital
Vice President at Enterprise Program Office Management, Johnson & Johnson
Susan Stein
Connexion Healthcare
Strategic Advisers
 Brian Campion, Strategic AdvisorJesse Dylan, Board MemberJason Omenn, Strategic Advisor
Brian K. Campion
Jesse Dylan
 Jason Omenn
PhD, Sr. Director Corporate Development & Strategy Dermira, Inc.
Founder of Wondros
 Senior Director of
Business Development