Community Events

Cystinosis Awareness Day – May 7

May 7, 2023

Register now

On May 7, 2023 the rare disease community will come together in honor of Cystinosis Awareness Day (CAD). Now in it’s sixth year, CAD is a global effort to raise funds and educate the general population about cystinosis.

Follow the Cystinosis Research Network on your favorite social channels for more information leading up to the event. If you would like to volunteer to become and event ambassador, please email [email protected].