GFPD Webinar: GFPD Patient Registry for Peroxisomal Disorders

Join our next GFPD Webinar to discover how the GFPD Patient Registry will empower all individuals with peroxisomal disorders to amplify their voices and share information on this rare disease, along with ways you can contribute! This global resource is for all peroxisomal disorders and will provide participant-centered data for researchers to use to advance drug development and treatment options to help improve peroxisomal disorders patient care.

Key Takeaways:
– Uncover how this registry will enhance the patient’s voice and disseminate information on all types of peroxisomal disorders.
– Find out how to participate and share your experiences.
– Learn how this will provide participant-centered data for researchers to use to advance drug development and treatment options.
– Get involved by asking live questions during the webinar.

Register now to save your seat!

After registering, you will receive a confirmation email containing information about joining this event.