Community Events
RAD Brain Workshop
January 28, 2025 - January 30, 2025
The RAD Brain Workshop is a three-day intensive meeting focused on the development of CNS therapies. This small-group format educational meeting is designed for rare disease patient advocates who are accelerating research in their neurological condition, and have already started funding and engaging directly
in research projects. This program is being developed in collaboration with the Rare Epilepsy Network (REN), and will be open to REN member advocacy groups. REN is a volunteer network that welcomes all rare epilepsy organizations to come together around research efforts, and its membership includes over 150 patient advocacy organizations representing neurological conditions.
Key Topics:
• Brain structure & function
• In vivo and in vitro research tools
• Diagnostics
• Therapeutic modalities
• IND-enabling studies
• Clinical research
• Regulatory approaches
