Synonyms: Atypical HUS | aHUS
A rare genetic thrombotic microangiopathy due to dysregulation of the alternative complement pathway and characterized by the triad of hemolytic anemia thrombocytopenia and acute renal dysfunction.
Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview. Reference: Access aggregated data from Orphanet at Orphadata. Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version March 2026
Newly diagnosed with
Atypical hemolytic uremic syndrome?
Our RARE Concierge Services Guides are available to assist you by providing information, resources and connections as you navigate your rare disease journey.
Advocacy Organizations
Turkish Association of the fight against PNH and aHUS Diseases
Our patient organization is called Turkish Assocaition of the fight against PNH and aHUS Diseases. We try to help to our patients in our community ,enlight their long journey, make them feeling not alone. We give them support and guidance.
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Clinical Trials
For a list of clinical trials in this disease area, please click here.