Synonyms: Malignant carcinoid syndrome
A rare neoplastic disease characterized by the occurrence of a hormonal syndrome resulting from secretion of humoral factors (including polypeptides vasoactive amines and prostaglandins) from a functional neuroendocrine tumor (particularly from the midgut) typically manifesting with increased bowel movements and diarrhea episodic vasoactive flushes (particularly of the face) hypotension tachycardia venous telangiectasia dyspnea and bronchospasms as well as long-term fibrotic changes in the mesentery retroperitoneum and of the cardiac valves.
Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview. Reference: Access aggregated data from Orphanet at Orphadata. Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version May 2026
Newly diagnosed with
Carcinoid syndrome?
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Advocacy Organizations
Neuroendocrine Cancer Awareness Network Inc
The Neuroendocrine Cancer Awareness Network (NCAN) is a non-profit organization dedicated to raising awareness of Neuroendocrine Cancer, providing support for caregivers and people with NETs, and funding for NET cancer research. Since 2003, it has been our mission, or as we like to say, our passion, to educate and support the NET community as a whole. That’s our thing.
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Clinical Trials
For a list of clinical trials in this disease area, please click here.