Synonyms: Notochordal sarcoma
Chordomas are rare malignant tumors arising from embryonic remnants of the notochord in axial skeleton.
Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview. Reference: Access aggregated data from Orphanet at Orphadata. Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version April 2026
Newly diagnosed with
Chordoma?
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Advocacy Organizations
Chordoma Foundation
We envision a future in which everyone affected by chordoma can overcome it and maintain their quality of life. To bring about our vision, we invest in three mutually reinforcing areas: research, patient services, and healthcare improvement.
Neuroendocrine Cancer Awareness Network Inc
The Neuroendocrine Cancer Awareness Network (NCAN) is a non-profit organization dedicated to raising awareness of Neuroendocrine Cancer, providing support for caregivers and people with NETs, and funding for NET cancer research. Since 2003, it has been our mission, or as we like to say, our passion, to educate and support the NET community as a whole. That’s our thing.
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Clinical Trials
For a list of clinical trials in this disease area, please click here.