Classical Ehlers-Danlos syndrome

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Classical Ehlers-Danlos syndrome

Synonyms: Classical EDS | cEDS

A rare inherited connective tissue disorder characterized by skin hyperextensibility widened atrophic scars and generalized joint hypermobility.

Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview.

Reference: Access aggregated data from Orphanet at Orphadata.

Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version March 2024

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Classical Ehlers-Danlos syndrome?

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Advocacy Organizations

Unfixed

Unfixed produces media that elevates stories of people living with chronic illness, rare disease and disability. The Unfixed portfolio of projects demonstrates that living well is not about eradicating our wounds and weaknesses but understanding how they complete our identities and equip us to help others. Current and past productions include multiple mini-series, a podcast and feature film.

Zebra CARE Initiative

To bring Charity, Access, Research, and Education (CARE) through and beyond the rare disease, disabled, and medically complex communities for a more inclusive and accessible medical system.

Clinical Trials

For a list of clinical trials in this disease area, please click here.