Congenital panfollicular nevus

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Congenital panfollicular nevus

Congenital panfollicular nevus is a rare benign skin tumor disorder characterized by the presence of congenital large (few centimeters) elevated well-circumscribed pink-tan multinodular non-ulcerative bosselated-surface skin lesions located on the neck scalp or hand and which enlarge with time. Histologically hamartomatous proliferation containing irregularly arranged malformed hair follicles in various stages of development surrounded by fibrous tissue and densely distributed within the dermis is observed.

Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview.

Reference: Access aggregated data from Orphanet at Orphadata.

Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version April 2024

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Congenital panfollicular nevus?

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Advocacy Organizations

My Faulty Gene

My Faulty Gene is a nonprofit organization which provides information and assistance to any individual whose family medical history suggests genetic testing might be helpful in identifying an increased risk of disease due to a genetic mutation. We believe that everyone in need of genetic testing should have access to it.

My Little Sunshine Foundation

My Little Sunshine is a non-profit foundation dedicated to educating people about the importance of fertility preservation and making fertility resources accessible to all.

SALUS

Educate and provide resources to POC with Rare Cancers

Clinical Trials

For a list of clinical trials in this disease area, please click here.