Dermatosparaxis Ehlers-Danlos syndrome

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Synonyms: Dermatosparaxis EDS | Ehlers-Danlos syndrome type 7C | Human dermatosparaxis EDS VIIC | dEDS

A form of Ehlers-Danlos syndrome (EDS) characterized by extreme skin fragility and laxity a prominent facial gestalt excessive bruising and sometimes major complications due to visceral and vascular fragility.

Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview. Reference: Access aggregated data from Orphanet at Orphadata. Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version June 2024

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Dermatosparaxis Ehlers-Danlos syndrome?

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Advocacy Organizations

Help Hope Live

Help Hope Live supports community-based fundraising for people with unmet medical expenses and related costs due to cell and organ transplants or catastrophic injuries and illnesses. These efforts play a critical role in helping clients access the care and equipment they need to heal, live, and thrive. Unlock a powerful and safe way to raise funds for medical needs with Help Hope Live. They provide one-on-one fundraising guidance, a customizable Campaign Page, bill pay support, and additional benefits based on their 501(c)(3) nonprofit status.

Zebra CARE Initiative

To bring Charity, Access, Research, and Education (CARE) through and beyond the rare disease, disabled, and medically complex communities for a more inclusive and accessible medical system.

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Clinical Trials

For a list of clinical trials in this disease area, please click here.