Synonyms: Aggressive fibromatosis | Desmoid type fibromatosis
A desmoid tumor (DT) is a benign locally invasive soft tissue tumor associated with a high recurrence rate but with no metastatic potential.
Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview. Reference: Access aggregated data from Orphanet at Orphadata. Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version February 2026
Newly diagnosed with
Desmoid tumor?
Our RARE Concierge Services Guides are available to assist you by providing information, resources and connections as you navigate your rare disease journey.
Clinical Trials
For a list of clinical trials in this disease area, please click here.
