Synonyms: Endometriosis outside pelvis
A rare non-malformative gynecologic disease characterized by the presence of functional endometrial glands and stroma in extrapelvic locations such as lungs pleura kidneys bladder abdominal wall umbilicus and cesarean section scar among others. Clinical manifestations are menstrually-related and depend on the location of the ectopic tissue but in general include pain mass/nodule swelling and/or bleeding in the involved area.
Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview.
Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http: //www.orphadata.org. Data version September 2023.
Newly diagnosed with
Our RARE Concierge Services Guides are available to assist you by providing information, resources and connections as you navigate your rare disease journey.