Growing teratoma syndrome
A rare neoplastic disorder characterized by benign metastatic masses increasing in size and number after chemotherapy for non-seminomatous germ cell tumors of testis or ovary. It may present at any time after chemotherapy with a median occurrence within 24 months after treatment completion. Per definition the resected specimen exclusively contains mature teratoma components and serum tumor markers have normalized. The retroperitoneum is the most common site although almost any other localization has been reported. Increased tumor size may cause mechanical compression of vital organs with renal dysfunction bowel ischemia and biliary obstruction as major complications.
Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview.
Reference: Access aggregated data from Orphanet at Orphadata.
Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version April 2024
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Growing teratoma syndrome?
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Advocacy Organizations
Help Hope Live
Help Hope Live assists individuals living with catastrophic injuries and illnesses to fundraise toward their medical expenses and related costs.
My Faulty Gene
My Faulty Gene is a nonprofit organization which provides information and assistance to any individual whose family medical history suggests genetic testing might be helpful in identifying an increased risk of disease due to a genetic mutation. We believe that everyone in need of genetic testing should have access to it.
My Little Sunshine Foundation
My Little Sunshine is a non-profit foundation dedicated to educating people about the importance of fertility preservation and making fertility resources accessible to all.
Pediatric Brain Tumor Foundation
The Pediatric Brain Tumor Foundation is committed to leading the way toward a future without childhood cancer. Because of supporters’ generosity, advocacy, and encouragement, thousands of families turn to us each year and find the resources and community support they need on their cancer journey.
SALUS
Educate and provide resources to POC with Rare Cancers
The JDS Foundation
A foundation that specializes in financial support to high risk and terminal cancer patients to assist in treatment, travel expenses, end of life wishes, outreach, and public awareness.
Clinical Trials
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