A rare severe early-onset developmental epileptic encephalopathy characterized by the triad of intellectual impairment multiple seizure types and typical electroencephalography (EEG) abnormalities.
Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview. Reference: Access aggregated data from Orphanet at Orphadata. Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version April 2026
Newly diagnosed with
Lennox-Gastaut syndrome?
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Advocacy Organizations
Cure GABA-A Variants
Cure GABA-A a non profit organization with the sole focus to develop potential therapies for GABA-A Variants By partnering with world renowned researchers in GABA-A and the organization of patients for clinical trials.
Genetic Epilepsy Team Australia
Collaboration of research and care
LGS Foundation
Our Vision: To end the suffering and devastation caused by LGS. Our Mission: The LGS Foundation is a nonprofit organization dedicated to improving the lives of individuals impacted by LGS through advancing research, awareness, education, and family support.
Mickie?s Miracles
To help families get into Level IV Pediatric Epilepsy Centers for diagnosis and treatment urgently -- and provide support to families for every season of the pediatric epilepsy journey.
Rare Epilepsy Network (REN)
Improving outcomes of people with rare epilepsies through an innovative collaborative infrastructure that drives urgent, patient-centered research, educaiton and advocacy.
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Clinical Trials
For a list of clinical trials in this disease area, please click here.