Monomelic amyotrophy

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Synonyms: Benign focal amyotrophy | Hirayama disease | JMADUE | Juvenile muscular atrophy of distal upper extremity | Juvenile muscular atrophy of the distal upper limb

Monomelic amyotrophy (MA) is a rare benign lower motor neuron disorder characterized by muscular weakness and wasting in the distal upper extremities during adolescence followed by a spontaneous halt in progression and a stabilization of symptoms.

Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview. Reference: Access aggregated data from Orphanet at Orphadata. Orphadata: Free access data from Orphanet. © INSERM 1999. Available on Data version June 2024

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Monomelic amyotrophy?

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Advocacy Organizations

Association Aux Pas du Coeur – Côte d’ivoire

Our organization wants to raise awareness and recognition of rare diseases in Ivory Coast. Our mission is to: Raise awareness and campaign to help with the diagnosis and free therapeutic care of patients. Request and/or contribute to actions relating to the training of the medical profession to be able to make a final diagnosis and ensure continuous monitoring of patients easily.

patriot for growth and development initiative

Patriots for Growth and Development Initiatives (PGDI), is a non-governmental and civil society organization that is dedicated to promoting sustainable development and poverty reduction in Nigeria and beyond. Founded in 2017 and registered with the Corporate Affairs Commission (CAC) in Nigeria, PGDI is committed to contributing to the attainment of the United Nations Millennium Development Goals

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Clinical Trials

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