New-onset refractory status epilepticus

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Synonyms: NORSE

New-onset refractory status epilepticus is an acute encephalopathy with inflammation-mediated status epilepticus characterized by an acute refractory status epilepticus typically of the tonic-clonic type following prodromal symptoms of confusion fever fatigue headache symptoms of gastrointestinal or upper respiratory tract infection behavioral changes or hallucinations. Brain MRI abnormalities and abnormal findings in CSF including pleocytosis and/or elevated protein levels are frequently found during acute episode. Treatment-resistant epilepsy cognitive and psychiatric impairments are usual consequences.

Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview. Reference: Access aggregated data from Orphanet at Orphadata. Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version May 2024

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New-onset refractory status epilepticus?

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Advocacy Organizations

Pediatric Epilepsy Research Consortium

The Pediatric Epilepsy Research Consortium (PERC) is a group of US pediatric epilepsy centers, researchers and professionals in field of epilepsy whose goal is to provide a network and infrastructure to facilitate collegial, collaborative practice-changing research that will provide answers needed to improve the care of children with epilepsy.

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Clinical Trials

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