Nodular fasciitis

Get in touch with RARE Concierge.

Contact RARE Concierge

Synonyms: Pseudosarcomatous fasciitis | Pseudosarcomatous fibromatosis

A rare soft tissue tumor characterized by a solitary mass-forming fibrous proliferation that usually occurs in the subcutaneous tissue composed of uniform fibroblastic/myofibroblastic cells displaying a loose growth pattern. Upper extremities trunk and head and neck are most frequently affected. The lesion typically grows rapidly and almost always measures less than five centimeters in diameter. Macroscopically it may appear circumscribed or infiltrative but is not encapsulated. Recurrence after excision is very rare and metastasis does not occur.

Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview. Reference: Access aggregated data from Orphanet at Orphadata. Orphadata: Free access data from Orphanet. © INSERM 1999. Available on Data version May 2024

Newly diagnosed with
Nodular fasciitis?

Our RARE Concierge Services Guides are available to assist you by providing information, resources and connections as you navigate your rare disease journey.

Get Concierge Help

Advocacy Organizations

My Faulty Gene

My Faulty Gene is a nonprofit organization which provides information and assistance to any individual whose family medical history suggests genetic testing might be helpful in identifying an increased risk of disease due to a genetic mutation. We believe that everyone in need of genetic testing should have access to it.

My Little Sunshine Foundation

My Little Sunshine is a non-profit foundation dedicated to educating people about the importance of fertility preservation and making fertility resources accessible to all.


Educate and provide resources to POC with Rare Cancers

Don't see your organization here. Let us know here.

Clinical Trials

For a list of clinical trials in this disease area, please click here.