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A rare idiopathic inflammatory myopathy (IIM) historically characterized by symmetric proximal muscle weakness elevated muscle enzymes (creatine kinase) myopathic findings on electromyography and muscle biopsy showing endomyial infiltration composed mainly of macrophages and lymphocytes. The features are non-specific thus the disease should be distinguished from similar entities with specific clinical immunological histological features notably dermatomyositis immune-mediated necrotizing myopathy anti-synthetase syndrome inclusion body myositis and myositis associated with other connective tissue disorder.

Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview.

Reference: Access aggregated data from Orphanet at Orphadata.

Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http: //www.orphadata.org. Data version September 2023.

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Advocacy Organizations

Association Aux Pas du Coeur

Our organization wants to raise awareness and recognize rare diseases in Côte d'Ivoire. Our mission is to: Raising awareness and campaigning to help with the diagnosis and free therapeutic care of patients. Request and/or contribute to actions relating to the training of the medical profession so that doctors are able to make a final diagnosis and ensure the continuous follow-up of patients. Create a patient registry to establish very precise statistics of rare diseases in Côte d'Ivoire. Create a close-knit patient community. Break the isolation and despair of sick people and their families. Open up to the world and actively contribute to international research aimed at treatments.

Clinical Trials

For a list of clinical trials in this disease area, please click here.